It could be when I notice a new symptom, or an old one gets worse, or perhaps just during a low point in the day, but every day without fail this thought will cross my mind.
I don't know of it means I don't believe in M.E. and if I don't believe how could I possibly expect anyone else to, but M.E. is such an open ended diagnosis with so many different symptoms and possibilities.
M.E. means something different to everyone who suffers from it, to everyone to cares for someone who suffers from it and to anyone else who just happens to hear the term.
I have had many people I've told say "oh yes that's what they used to call yuppie flu." Some sincerely because that's all they know about it, some jokingly obviously because that is how they think of it still.
I put some effort into raising awareness of M.E. I think it is important for everyone to have a vague idea of what it is, and if you know someone with it be able to look a little deeper into it. But the trouble is this illness effects so many people in so many different ways.
I will give an example of 2 people with the same broad diagnosis of M.E.
Person A: is completely bed bound, perhaps paralysed, cannot do anything for themselves, cannot even have bright light in the room.
Person B: works a fairly normal 40 hour week, but gets very tired and sore from this and perhaps then can't socialise and has to rest all weekend.
Both could have exactly the same diagnosis but lead very different lives, and there are an infinite number of variations between those two examples.
This illness needs research, research and more research.
Everyday when I wonder is this 'just' M.E. it is scary. If I went running to the dr with every new scary symptom I would be labeled a hypochondriac but where do you draw that line?
I wonder how many people with a diagnosis of M.E. stay clear of the doctors unless absolutely necessary only to find that actually there was something else and they should have gone in ages ago?
